I live with petit mal epilepsy in my temporal lobe, which is not as damaging as full blown grand mal epilepsy. I do not have seizures as such, I rather pass out or ‘go blank’ or faint or just kind of switch off in a way. It’s like a little switch in my head flips and I’m all of a sudden not there anymore. I get awful headaches and very funny feelings all over my body, sometimes I even hallucinate and other times I’m just so out of it I cannot communicate.
My psychiatrist says that often bi polar and epilepsy go hand in hand, that the epilepsy triggers bi polar episodes and such. I was diagnosed when I was about 16 (I’m now 20) and have been on tons of medication and been in hospital countless times. It’s something my family and I have come to live with. It’s not something you can just get right with a pill and then expect everything to be fine. Because we’re dealing with hormones and brain chemicals that are constantly fluctuating (and greatly influenced by things like alcohol and caffeine). It is a constant struggle to get things to some degree of normality. Normality being not passing out every 5 minutes.
So I have come to accept the fact that I will never just get better. We can reach a place where I’m as stable as can be but even that can change so quickly.
But what I would like to do with this post is clear a few things up.
Epilepsy isn’t gross or contagious, you can’t swallow your tongue or anything like that. Although with grand mal seizures they can be pretty scary and violent. We are normal people. Every now and then our brains just experience a little electric storm and we may lose consciousness or lose track of what we were saying. It doesn’t make us fainting damsels in distress or rude because we got confused and did not remember a conversation – it just makes our brains a little different. An electrical storm took place in our brains and we were unable to receive or send out information effectively. It is neurons misfiring. We are not stupid or rude or drama queens (and kings!)
For me personally, I feel an epileptic attack coming on and am most often able to stop what I’m doing and lie down. Because I just faint or black out I have hurt myself countless times (falling down stairs etc.) and it’s not fun. As the years have gone by I have been able to recognize the signs and take my medication and look after myself. I’m usually down and out for a few days until my body recovers and I can resume life as usual. It’s hard, but we have learned to deal with it and try make the best of it.
I’ve scoured the internet to find a video that may explain things a bit better, and raise some awareness for those living with epilepsy.
Also it’s very possible to go through life not knowing you have a form of epilepsy. Ever been called a “scatter brain?” Ever been lost in a daydream and can’t recall what you were doing or thinking? If these go hand in hand with some other type of mental disorder, it’s a very real possibility you could be suffering with a mild form of epilepsy and should ask your doctor about it and get test done.
I found a video on YouTube that debunks some of the myths about epilepsy. I found it pretty interesting:
I tried to upload the video directly but couldn’t quite get it right!
If you are looking for more information, visit http://www.epilepsy.com/
Also, here is my video blog of what it’s like to have a seizure :
Thanks for the read and take care everyone. Have a great day 🙂 xxx